Page 34 Volume 16 - N.3 - 2008
P. 34
I. Galriça Neto: As Conferências Familiares como Estratégia de Intervenção e Apoio à Família em Cuidados Paliativos
as do impacto deste tipo de trabalho nas famí- 11. Harding R, Higginson IJ. What is the best way to help caregivers in
lias e na sua vivência dos cuidados em fim de cancer and palliative care? A systematic literature review of interven-
tions and their effectiveness. Palliative Medicine. 2003;17:63-74.
vida, sobre os critérios para a realização desta 12. Hilty SA. Reimbursement for Patient and Family Meetings and the
intervenção, sobre custos associados (tempo Costs of Care at the End of Life. JAMA. 2008 Nov;300:2119-20.
gasto/profissional). 13. Hudson P. Positive aspects and challenges associated with caring
Para as famílias, o confronto com a experiên- for a dying relative at home. Int J Palliat Nursing. 2004 Feb;10(2):
58-65.
cia da doença terminal representa uma ameaça 14. Hudson PL, Aranda S, Kristjanson LJ. Meeting the supportive needs
mas também um desafio. Oxalá a intervenção of family caregivers in palliative care: challenges for health profes-
sionals. J Pall Medicine. 2004;7:19-25.
de apoio de profissionais qualificados e sensí- 15. Hudson P, Quinn K, O’Hanlon B, Aranda S. Family meetings in pal-
veis possa tornar essas vivências em períodos liative care: Multidisciplinary clinical practice guidelines. BMC Pal-
que, embora dolorosos, sejam geradores de re- liative Care. 2008;7:12. Disponível em: http://www.biomedcentral.
com/1472-684X/7/12
forço das relações familiares e de crescimento 16. Kirchhoff KT, Song MK, Kehl K. Caring for the family of the critically
pessoal. ill patient. Crit Care Clin. 2004 Jul;20(3):453-66.
17. LaVera MC, Marshal PA, Lo B, Koenig BA. Strategies for culturally
effective end of life care. Annals of Internal Medicine. 2002;136(9):
Bibliografia 673-9.
18. Lo B, Quill T, Tulsky J. Discussing palliative care with patients. An-
1. Ambuel B. Conducting a family conference. Em: Berger AM, nals of Internal Medicine. 1999 May;130(9):744-9.
Portenoy RK, Weissman DE, eds. Principles and practice of sup- 19. McDonagh JP, et al. Family satisfaction with family conferences. Crit
portive oncology. Nova Iorque: Lippincott William and Wilkin Health- Care Med. 2004 Jul;32(7):1484-8.
care; 2000. 20. Neto I, Trindade N. Family meetings as a means of support for pa-
2. Azoulay E. Meeting the needs of intensive care unit patient families tients. EJPC. 2007;14(3):105-8.
- a multicenter studie. Am J Resp Crit Care Med. 2001;163:135-9. 21. Payne S, Smith P, Dean S. Identifying the concerns of family carers
3. Baker R, at al. Family satisfaction with end-of-life care in seriously in palliative care. Palliative Medicine. 1999;13(1):37-44.
ill hospitalized adults. Journal of the American Geriatrics Society. 22. Rabow MW, Hauser JM, Adams J. Supporting family careguivers at
2000;48 Suppl 5:61-9. the end of life: They don’t know what they don’t know. JAMA. 2004;
4. Chan EK, et al. What work for therapists conducting family meetings: 291(4):483-91.
treatment integrity in family-focused grief therapy during palliative 23. Ramirez A, Addington-Hall J, Richards M. The carers. BMJ.
care and bereavment. Journal of Pain and Symptom Management. 1998;316:208-11.
2004 Jun;27(6):502-12. 24. Regnard C, Hockley J. Flow diagrams in advanced cancer and
5. Chochinov HM. Dignity-conserving care - a new model for palliative other diseases. Londres: Edward Arnold; 1995.
care: helping the the patient feel valued. JAMA. 2002;287:2253-60. 25. Steinhauser K, Christakis NA,Clipp E, McNeilly M, McIntyre L, Tulsky
6. Curtis JR, Engelberg RA, Wenrich MD, Nielsen EL, Shannon SE, J. Factors considered important at the end of life by patients,
Treece PD, et al. Studying communication about end-of-life care family, physicians, and other care providers. JAMA. 2000 Nov;
during the ICU family conference: development of a framework. J 284:2476-82.
Crit Care. 2002 Sep;17(3):147-60. 26. Teno JM, et al. Family perspectives on end-of-life care at the last
7. Curtis JR, et al. Missed opportunities during family conferences place of care. JAMA. 2004 Jan;291:88-93.
about end-of-life care in the Intensive Care Unit. Am J Respir Crit 27. Towle A, Godolphin W. Framework for teaching and learning in-
Care Med. 2005;171(8):844-9. formed shared decision making. BMJ. 1999 Sep;319:766-71.
8. Doherty W, Baird M. Family centered medical care – a clinical case- 28. Von Gunten CF, Ferris FD, Emanuel L. Ensuring competency in
book. Nova Iorque: The Guilford Press; 1987. end of life care communication and relational skills. JAMA. 2000;
9. Glajchen M. The emerging role and needs of family caregivers in 284:3051-7.
cancer care. J Support Oncol. 2004 Mar-Apr;2(2):145-55. 29. Weissman DE. Managing conflits at the end of life. J Palliative
10. Grbich C, Parker D, Maddocks I. The emotions and coping strate- Medicine. 2001 Spring;4(1):1-3.
gies of caregivers of family members with a terminal cancer. J Pal- 30. WHO Europe. Palliative Care – the solid facts. Davies E, Higginson
liative Care. 2001 Spring;17(1):30-6. IJ, eds. 2004.
DOR
33